Alan Brand Living Positively with HIV An Inspirational Story - Interview for Doctors Orders SABC TV3

Positively Alive - Employee Wellness Consultant and Specialist HIV/AIDS Training Facilitator

AIDS, HIV, TB, absenteeism management, Peer educator, Counselling Skills, Champions of wellness and much much more,

Employee Wellness training provider and facilitator. 

Specialising in; HIV/AIDS Peer Educator/Wellness Champions Training Modules, HIV/AIDS Awareness Training Module and Managing Wellness in the Workplace – Policy and Law Training Modules.

Should you require on site employee wellness training, contact Alan Brand for a formal quotation or for further details regarding the courses provided, accreditation or much more.  Available to conduct training througout South Africa.

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Employee Wellness Consultant and Specialist Trainer

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Alan Brand

Mobile: +27 (82) 453-0560

Direct Line: +27 (11) 482-5605

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E-mail: albrand@iafrica.com
Website: www.positivelyalive.wozaonline.co.za/home

Brief Historical outline of HIV and AIDS – South Africa.

Introduction:


An estimated 5.6 million people were living with HIV and AIDS in South Africa in 2009, more than in any other country. It is believed that in 2009, an estimated 310,000 South Africans died of AIDS. Prevalence is 17.8 percent among those aged 15-49, with some age groups being particularly affected. Almost one-in-three women aged 25-29, and over a quarter of men aged 30-34, are living with HIV. HIV prevalence among those aged two and older also varies by province with the Western Cape (3.8%) and Northern Cape (5.9%) being least affected, and Mpumulanga (15.4%) and KwaZulu-Natal (15.8%) at the upper end of the scale.

Marking a welcome change from South Africa's history of HIV the South African Government launched a major HIV counselling and testing campaign (HCT) in 2010.

By raising awareness of HIV the campaign aims to reduce the HIV incidence rate by 50 percent by June 2011.

History:

1982 – The first HIV infections were diagnosed in South Africa in two white, homosexual flight attendants who had travelled to the United States. This lead to the belief that HIV was largely a white, homosexual disease in SA, as was the case in the US and Europe. As a result, the homophobic apartheid government, which was in power at the time, disregarded the health risk and ignored the issue.

1987 – The first black South African was diagnosed with AIDS-related illness.

1990, Chris Hani, chief of the ANC guerilla force (known as ‘Spear of the Nation‘) said, ‘Those of us in exile are in the unfortunate situation of being in the areas where the prevalence is high. We cannot afford to allow the AIDS epidemic to ruin the realization of our dreams. Existing statistics indicate that we are still at the beginning of the AIDS epidemic in our country. Unattended, however, this will result in untold damage and suffering by the end of the century.' Chris Hani was tragically assassinated shortly before democracy was achieved.

1991 – Heterosexual HIV infection rates equalled homosexual ones. (Heterosexual infections has since become the main mode of transmission of the virus in SA)

Coinciding with the turbulent political period, HIV and AIDS started to gain national public interest though it is not difficult to understand why all energy was focused on deciding South Africa’s political fate seeing the need to address a complex and tough negotiation process needed to end apartheid.

1992 – ( a decade after the 1st reported case), a group of political parties, trade unions, academics, business organisations and civil society groups formed the National AIDS Coordinating Committee of South Africa (NACOSA).

1994 – South Africa’s first democratic elections, and the ANC Government adopted a National AIDS Plan – but the scheme hardly translated into action.

Scandals: - made situation worse!

Sarafina II – A musical screenplay which was supposed to raise awareness of HIV and AIDS was judged widely to be beside the point and confusing. The government funded play used large amounts of unapproved European Union money.

Virodene - South African Government caused worldwide embarrassment when it committed millions to medical trails of an antiviral drug Virodene. Virodene was found to contain a toxic industrial solvent.

1998 – Aids Activists and researches called for the scientifically approved drug AZT to be administered to prevent transmission of HIV from mother to child. ANC turned down this call arguing it would rather focus on education and prevention campaigns then treatment.

HIV-positive AIDS activist Zackie Achmat formed the TAC in December 1998.

1999 – Newly elected president Thabo Mbeki appointed Manto Tshabalala-Msimang as health minister, heralded an even stronger stance against antiretroviral drugs. Mbeki’s questioning if HIV causes AIDS adding to the conflict between organisations like the TAC.

2001 – Death of presidential spokesperson Parks Mankahlana, Official ANC statement reported that his death was due to heart failure after a long illness. When the SA media speculated that his illness was AIDS related, it sparked heated national debate on the ethics of HIV reporting, including objectivity, privacy.

Court Cases

2002 – The TAC and Children’s Rights Centre filed a court motion and later a constitutional claim against the health minister and provincial MEC’s to compel them to make Nevirapine available to women giving birth in state hospitals. The court ruled in favour of the TAC in 2001 and again in July 2002.

2003 – TAC focuses shift to pushing government to roil out ARV treatment through the public Health system. When health minister refused to sign a draft national treatment plan, the TAC launched a civil disobedience campaign. More than 10,000 people protest in front of parliament during Mbeki’s State of the Nation address.

19 November 2003, Cabinet finally announces the health department would make available ARVs to all who need them.

2004 – 2005 Rollout of ARVs slow with treatment guidelines only being issues in September 2004 and supplies of ARVs only being selected in March 2005.

2006 - Tshabalala-Msimang insists that a healthy diet and nutritional supplements, including garlic, beetroot and the African potato, could offer an alternative to ARV treatment. Stephen Lewis, publicly slated Tshabalala Msimang’s statements at the 2006 International AIDS Conference in Toronto Canada. At the same conference, AIDS law Project leader Mark Haywood demanded that the health minister be fired.

Tshabalala-Msimang was hospitalised in late 2006 and her deputy Nozizwe Mandlala-Routledge with Deputy President Phumzilie Mlambo-Ngcuka made major steps to bring back the reputation of the South African National AIDS Council (SANAC), attempting to repair the damaged relationship with civil society organisations, particularly the TAC.

2007 – Government launched its progressive HIV and AIDS and STI Strategic Plan for SA 2007 – 2011, indicating a shift in its health policy. Its main objective being to provide ARV treatment to 80% of people who need it and to half new HIV infections by 2011.

Later that year Mbeki sacked Madlala-Routledge, allegedly because she was too critical of her predecessor and himself. Tshabalala-Msimang was reinstated resulting in the newly built bridges between the department of health and civil society groups quickly crumbling yet again.

2008 – Tshabalala-Msimang finally lost her post to Barbara Hogan in September 2008. Hogan’s term was short lived despite her popularity and commitment to cooperate with civil society.

2009 – Newly elected president Jacob Zuma appointed a previously little-known politician Aaron Motsoaledi to the position of health minister. Aaron Motsoaledi has so far made a number of positive statements, showing intention to tackle the epidemic and improve health services provision.

2010 - For the first time in the history of the South African epidemic, a real properly resourced HIV testing campaign was launched. Minister of Health Dr. Aaaron Motsoaledi is leading the largest every HIV testing drive on the continent with a target to test 15 million people by June 2011

References:


Kirsten Palitza, Natalie Ridegard, Helen Struters and Anton Harber “What is Left Unsaid” Published by Fanele an imprint of Jacana Media (PTY) Ltd on behalf of the Anova Health Instutute, in 2010


Fidel Hadebe, Vukani Mnyandu; Department of Health, 22 Feb 2011


Center for Law and Social Justice, Minister Aaron Motsoaledi delivers — 15 million people to be tested. Get tested. Prevent HIV. Get treated. Always use a condom!


Professor S Karim, University of Natal, King George V Avenue, Durban 4041, South Africa, International Epidemiological Association 2002


Sher R. Acquired immune deficiency syndrome (AIDS) in the RSA. S Afr Med J 1986


http://www.avert.org/history-aids-south-africa.htm

Mindfulness

Buddhism means a commitment to the practice of mindfulness.

It's the practice of opening oneself up and being receptive to the flow of sense perceptions, emotions, and thought processes in each given moment while attempting to hold judgment in abeyance. This is done with no other goal than to be as present as one can possibly be within each and every moment. One does this with an intimate attention that is very different from a scrutinizing, objective stance.

Rather than being a distant observer of a set of experiences, one is a participant-observer, and what one observes is not only the sense impressions of the "outside" world, but also one's own subjective reactions to that world... In these moments of unimpeded awareness there is a wonderful sense of lightness of being, and a sense of the rightness to things just as they are.

In these moments when the sense of a separate self that needs defending, approval, status, or justification is nowhere evident, one is open to being present and responsive to the world in a deeply caring way. This is what I mean by mindfulness: seeing events as they are with minimal interference from a separate ego that needs to control both self and world; being intimately in touch with the moment as it is, and open-heartedly responsive to it.

Experience in Being Mindful – Ixopo Buddhist Retreat 23 to 25 April 2010

While at the Ixopo Buddhist retreat we went on a walk through indigenous forests and eventually arrived at a grassy knoll. We climbed over a fence and soon reached an outcrop of rocks that provided a vista of the valley below. While everyone looked into the distant valley, I peered between the rocks and notice a very insignificant spray of white flowers growing between the crevices of the rocks. I lay down on my stomach to observe the flower.

The Buddhist teacher who was our guide on the walk saw me lying face down on the rock and peering into the abyss below and asked if I was ok… (I guess it might have looked like I was throwing up over the cliff). I responded, “I am being mindful of a flower”. She smiled a gentle smile similar to Buddha’s smile. “What have you learnt from the flower?” she asked.

As I had my camera with me I replied that I could show them that I had discovered that even an insignificant white flower has a spectacular landing strip to attract insects. “It just shows that when one is silent and observant even the most insignificant being can reveal incredible beauty”, I said. Nothing more nothing less it just is so, in the silence of being mindful I learnt again to appreciate that which was right there in front of me. It had always been there it had not changed or become more than it was before what had changed was my ability to take the time to be mindful of the beauty it waited to reveal.

THE BOY THAT LOVED RABBITS - FACING MY SHADOWS

This short story is the journey of discovery of a little boy’s love for rabbits and his darkest shadows, and a path of healing through forgiveness and acceptance, to his biggest gift.

It was in 1963, on a beautiful crisp clear morning in Bellville, South Africa that a mother returned home with her three sons after walking to the local Post Office to post a letter to her family in England. After putting the youngest son in his play pen, strangely tired, she lay down and asked her eldest son to read to her. She had been suffering from pains in her legs and the walk to the Post Office now made the pain worse. As she nodded off to sleep he used the book to cool her, fanning her as she seemed uncomfortable and hot. Silently she fell asleep never to awaken again. She had suffered a heart attack from the blood clot in her leg. Unaware the boy continued to fan his mother.

Figure 1; the little boy that loved rabbits mom

The second eldest son was sitting in the lounge on the floor using the sun light streaming in through the window to make finger shadows of a rabbit on the wall. His mother had taught him to make finger shadows on his bedroom wall. He was afraid of the dark and as he loved rabbits this was always his favourite finger shadow and helped him not to feel alone in the dark.

In no way did the little 4 year old boy that loved rabbits know that on this day events would be set in motion causing his entire life to take a direction that would cause the shadow of rabbits to become his darkness.

Ambulance men in uniform, priests, sirens, a funeral, family and friends visiting and a father in mourning: - The significance of these things couldn’t be understood by the little boy that loved rabbits. Questions about where his mother was and when she would come and read him stories and tuck him into bed again, answered with stories of Jesus having taken her away as he needed her more than the little boy did. But I need her too! Please Jesus send her back you have had her long enough. Sadness, sorrow and change! Dear Jesus please, just once more, allow her to come read me a bedside story and tuck me in? I’ll never ask again if you only let her enter my room one more time.

Figure 2 from right to left, the little boy that loved rabbits with his baby brother Gary, and his eldest brother Peter.

Then one Sunday dad seemed happier and told the boy that today he would take him and his brothers to visit some real rabbits. We were the only people at this big place that had rabbits. Dad took us into the back garden and there they where is a wooden rabbit hutch. We had brought carrots to feed the rabbits, trilled, exited and giggling as there little noses wiggled when they sniffed and ate the carrots.

Figure 3; from left to right, the little boy who loved rabbits with his father and youngest brother meeting the rabbits at Marsh Memorial Homes.

The father asked if the little boy that loved rabbits would like to live here where the rabbits lived and in utter disbelief he answered: “Really dad can, can we, can we please?” Then I can always feed the rabbits.

The boys where shown to a large dormitory with rows of beds and father showed them that he had already packed a suitcase with all their belongings. They happily placed their possessions in the cabinets and cupboards next to the beds allocated to them. Father said he had to leave the boys and promised that he would come to visit on weekends when he could. As the day continued more and more boys arrived and the beds and cupboards became fuller and fuller.

The Marsh Memorial Homes in Rondebosch, was to become the home to the three boys for the next few years. The little boy that loved rabbits would spend his days sitting crying at the rabbit hutch not understanding why his father had also abandoned him. At night when all the boys where asleep he would silently lie and raise his hands and use the moon light to make rabbit shadows on the wall. But over time he began to realise that not even his love for rabbits could make him happy, his loneliness deepened and grew.

One day his sadness caused such pain that he became ill and ended up in the infirmary. The nurses where kind and caring and he met an elder boy that was in the infirmary that gave him attention and took an interest in him. He became like an older brother to the boy. This older boy was a senior and had the little boy that loved rabbits not become ill he would never have met the older boy. The older boy went to high school and he was the leader of a gang that owned their own tree house in a huge old oak tree past the apple orchards behind the orphanage. When they were both well the elder boy took the young boy with him to the tree house and he was the only one from the junior dormitory allowed into the tree house. Nobody was ever allowed to hurt, say nasty things or tease the little boy who loved rabbits any more as he had the protection of the elder boy. The little boy that loved rabbits stopped visiting the rabbit hutch and fell in love with his new protector and spent every spare moment in his company. One Sunday morning in the chapel during morning mass, while sitting with the youngest boys in the first row of church pews the boy noticed a pray-mantis sitting on the handrail that separated the inner sanctum from the rest of the church. He looked in amazement at the insect, it seemed to be praying. He wondered if Jesus listened to the pray-mantis as it seemed Jesus never heard his prayers. He asked the pray mantis to please ask Jesus how his mother was and when his father was coming to take them home.

That day his dad came to visit after church, he had beautiful women with him. The three brothers where introduced to the lady and they were taken on a picnic and told that they would soon be coming home to live with their dad and this new lady.

Soon the day arrived and the boys were removed from the orphanage, their father remarried and they were now introduced to a step brother and two step sisters. The young boy that loved rabbits missed his protector and the visits to the tree house. He deeply missed the care and love the elder boy showed towards him. His eldest brother and step brother where so much bigger than him but they teased him for being weaker, smaller and silly and hurt him, ganging up on him. He longed for the comfort and protection of the older boy at the orphanage why could he never see him again?

Many years past and the boy grew older and went to school. The family lived in Somerset West in the Western Cape and the boy now had a huge rabbit hutch with hundreds of rabbits. He spent every spare moment caring and looking after his rabbits. At night he was filled with thoughts of sadness and the only way to help him feel better was to dream of being taken away by someone that would own and protect him. Just like he cared for his rabbits so he wished he could be caged and loved and cared for by someone like himself that loved him unconditionally. The dreams became darker and darker as he lost his ability to find joy other than in seeking it in darkness and the nightmares of his mind.

Perhaps if he became ill he would be sent back to the infirmary and he would again meet his protector or a new protector that would love and care for him and that he could look up to and admire. Maybe if he was ill his brothers would stop hurting him. At least if he was sick his father and step mother would have to take extra care of him and he would get the most love and attention.

The Hottentots Holland Mountain range was covered in snow, icy winds gushed around the home and the rain outside was icy cold. The boy decided that he could make this all happen by taking action himself and he took a hot, hot bath and ran into the rain hoping that he would become ill. He ran back inside and jumped back into the hot bath and then dashed back outside and stood in the cold until his body ached with the pain of the cold winter’s night. The next morning he awoke and did not feel anything was wrong and sadly felt that he could not even get it right to make himself sick. During school that day he developed a terrible fever and was sent to the school infirmary. His stepmother was called to fetch him and he was taken home. He became awfully ill; the doctors said he had double bronchitis and severe bronchial pneumonia. His wish to become ill was a reality he had been able to take control and cause enough harm to himself that his stepmother had to take special care of him. The seriousness of his illness resulted in him missing an entire term of schooling and everyone was sorry for him and showed him love and compassion.

He lay in bed fighting the illness, and no matter how bad he felt or how sick he was he was content as he lay making rabbit shadows on the wall. He felt loved and care for and that was all that mattered.

The little boy that loves rabbits is a big man now; he still loves rabbits but never makes shadows of rabbits on the wall anymore.

The shadow of this man remains hidden from himself and others as throughout his life he has used illness to find love and compassion. Controlled and suppressed he has learnt to successfully hide his darkest feelings, his deepest thoughts and darkest shadows. Yet he has used a natural empathy for others that suffer and are ill or in pain. He has reached out to many people feeling the reality of their pain. While he hides his own pain, he has tirelessly fought to protect his shadows from revealing themselves to others. He has suffered many illnesses, been diagnosed with a malignant melanoma, now living with HIV he has become a champion helping many to come to terms with this dark, dreaded disease. Not aware that through his unconscious mind he has attracted these diseases to himself.

Yet only today, has he learnt that the very shadow of his entire life has been his greatest gift. The shadow he has spent so much energy hiding has been the universes purpose for his life.

Today I embrace my shadow; my name is Alan Brand, the author of the book Positively Alive, the Group Wellness Manager of a large South African corporate company. I have counselled and helped many to move from the darkness of HIV into acceptance. I continue to dedicate my life to teaching others to come to terms with being HIV positive, living with chronic diseases, battling with cancer and emotional pain. I acknowledge my shadow; it is my greatest gift and no longer controls and hurts me. I step forward and took the lead in creating a support network for HIV + gay men in South African. I forgive myself for bringing harm to my body and for attracting hurt and pain in my life as I now learn to embrace my shadow. Without the experiences of my darkest shadows I could never have had the ability, the empathy and strength to stand up and help others to find the shadow in their own lives.

I have continue to walk the path of illness, annually suffering more and more health issues not aware that subconsciously I am attracting these illnesses to myself as it has become my life’s experience. Today I set my shadow free; I hold it high and reveal it to all to see. I forgive and embrace by shadow and accept that, that which I have been so scared to reveal has become my greatest gift.

I am today facing the little boy who loved rabbits; I am facing the terror of loneliness, despair, and abandonment. I forgive Jesus for “needing” my mother at a time when I needed her so much more. I forgive my father for taking me to see rabbits and leaving me in an orphanage, I forgive myself for seeking illness as my only means to find comfort and love. I embrace my higher purpose, my heroic self; I reveal my darkness and have overcome my shadows. I forgive not because I condone or seek to give these events or the people responsible the power or joy of my forgiveness, my forgiveness is selfish. I need to forgive as the only means to release myself from the pain caused and experienced. Through forgiveness I set my soul free and can heal.

The journey continues as I walk a path of healing, living and thriving with HIV and using my shadow self; to understand the pain of others I will continue to learn how this shadow has given me the power to reach the greater purpose of my life.

I seek to stop the need to call pain and illness into my life as my means to find comfort and protection. The adult man now meets the little boy, who loves rabbits, and lifts him into his arms, embraces him lovingly allowing him to life in harmony with his shadows.

Written by: Alan Brand; Date 19 March 2010